Sr. Manager, Patient Advocacy, Global Rare Diseases

Purpose

Chiesi is looking for a highly motivated, collaborative, and compassionate individual for the position of Sr. Manager, Patient Advocacy in the Rare Diseases business unit.

Reporting to the Head Patient Advocacy, this individual will develop and execute programs in the US, Canada, and Latin America (Americas) based on the global patient advocacy strategy. Rare disease therapeutic areas of focus include Alpha-mannosidosis and Fabry disease. We are looking for someone who has the desire to make a difference for patients and community by developing and expanding relationship-partnerships with patient advocacy organizations and ensure that the needs and insights from these relationships are reflected in Chiesi’s decision-making process. You will represent the “voice of the patient” to educate internal cross-functional teams and champion patient-centered ideas and programs.

Main Responsibilities

• Contribute to the Global Rare Disease patient advocacy strategy, reflecting Chiesi’s commitment to the patient community.
• Develop and implement plans to directly engage US and Canadian patient communities and share projects and programs with Chiesi LATAM partners while working cross-functionally with key internal partners.
• Serve as primary point of contact to build and maintain collaborative, long-term partnerships with stakeholders and patient advocacy groups and compliantly exchange of information related to Chiesi Rare Diseases areas of interest.
• Represent the patient perspective during planning strategy meetings and contribute to the successful implementation and achievement of business goals.
• Propose and implement patient advocacy programs and partnerships that include educational programs, advisory boards, patient speaker engagement, clinical trial awareness, policy advocacy, etc.
• Work with advocacy groups to provide compliant resources to help them develop, grow, and build capabilities.
• Champion the patient voice based on understanding the patient perspective to inform internal decision making.
• Conduct engagements in adherence with legal, compliance and regulatory guidelines to ensure Chiesi Rare Diseases relationships with advocacy stakeholders are respectful and appropriate.
• Represent Chiesi Rare Diseases at specific meetings and present when needed.

Experience Required

• 5+ years of experience in the bio-pharmaceutical environment with at least 2 years of relevant professional experience in rare disease and patient advocacy.

• Understanding of drug research and clinical development, regulatory, compliance and disclosure guidelines.

   

• Strong listening, communication, networking, and interpersonal skills; ability to build relationships of trust quickly with a wide range of stakeholders.

   

• Ability to manage external expectations conscientiously and diplomatically for high-risk early-stage programs.

   

• Ability to translate terms and concepts to audiences with different perspectives and levels of understanding.

   

•  Ability to work collaboratively across all functions and levels of the organization and influence without reporting authority.

   

•  Strong project and program management skills. · Based in Boston and must be willing and able to travel nationally and internationally (approximately 40%).

Education

Bachelor’s degree in social science, public health, science, or related field; advanced degree a plus.